Genetic Counseling Research Projects

2007 Research Projects

• Challenges Prenatal Genetic Counsellors Encounter When Counseling Adolescent Patients
• Preimplantation Genetic Diagnosis: How are Patients Gaining Health Insurance Reimbursement?
• An Examination of the Differences in Response, Coping and Adaptation of Mothers and Fathers to Diagnoses of Genetic Conditions
• Genetic Counseling from the Rural Patient Perspective: Knowledge of, Interest in, and Accessibility to Services
• Employing a Web-Based Teaching Tool to Recruit Undergraduates into Genetic Counseling
• Genetic Counseling practices for variants of uncertain significance in whole-gene sequence analysis: a BRCA case study
• Perceptions of Severity and Interest in Prenatal Diagnosis and PGD among Individuals with Hereditary Multiple Exostoses (HME)
• Parents of Children with Autism Spectrum Disorders: Assessing Interest in and Satisfaction with Genetic Services

2006 Research Projects

• Experiences of families with children who have undiagnosed syndromes: is there a need for increased support?
• Newfoundland and Labrador general/family practitioners' knowledge of medical genetics and utilization of genetics services
• Infertility and the genetic assessment: an educational resource for fertility treatment providers
• Identifying Possible conflicts-of-interest for research genetic counselors
• Pilot study: family practitioners' attitudes, knowledge and use of genetic counseling services
• Knowledge of Ashkenazi Jewish Carrier Screening Among a College Student Population
• Current Knowledge of Genetics among Medical Students in New England
• Internet vs. Face-to-Face Huntington Disease Support Groups; A Comparative Survey
• Self-Disclosure in the Pedicatric Genetic Counseling Session: A Retrospective Comparison

2005 Research Projects

• Multicultural Genetic Counseling: What Works?
• Snapshot of Pre-test BRCA Genetic Counseling Models
• Impact of an uninformative brca test result: experiences of women with personal and family histories of cancer
• Where Do Genetic Counselors Go For Health Care, and Why?
• Self-Disclosure and Prenatal Genetic Counseling: Current Opinions and Practices
• Disclosing BRCA test results to children and adolescents: Genetic counselor and parent experiences
• Current opinions on the use of carrier embryos in PGD for X-linked conditions
• Assessing the Knowledge and Application of Genetic Testing by Physicians Working with Infertility Clients
• Non-Native Spanish-speaking Genetic Counselors: The Use of Spanish Interpreters

2004 Research Projects

• Creating a Genetics Resource Tool for Early Intervention Service Providers: Needs Assessment and Web-based Implementation
• Current Practices and Beliefs About Predictive Testing in Minors for Later-Onset Genetic Conditions
• The role of complementary and alternative (CAM) therapies in cancer genetic counseling
• Providers Offering Prenatal Testing in Norway: Their Attitudes Regarding Prenatal Diagnostic Services
• The experiences and preferences of parents receiving the diagnosis of a genetic condition in their child
• Routinization of Prenatal Screening: Does it erode informed consent?
• Knowledge and Attitudes Towards Molecular Genetic Testing of Endocrine Disorders

2003 Research Projects

• Nurse Midwives Knowledge of Genetic Services
• Burnout in Genetic Counselors: identifying risk factors and means of coping
• Development and validation of family history questionnaire for preconceptual risk assessment
• Choosing Special Needs Adoption: A website for birthparents considering adoption and the health professionals caring for them
• Booklet for educators of children with 22q deletion syndrome
• Attitudes and experiences of prenatal care amoung deaf women
• Obstetrician-Gynecologists implementaiton of the 2001 ACOG guidelines on cystic fibrosis carrier screening
• The Process of Informed Consent
• Assessing Attitudes and Knowledge Base of Urologists Regarding the Genetics of Predictive Testing for Prostate Cancer
• Consensus in Genetic Counseling community for offering screening tests: the example of Fragile X Syndrome

2002 Research Projects

• Consensus in Genetic Counseling Community for offering screening tests: the example of Fragile X
• Pharmacogenomics: A Qualitative Study of the Ethical, Legal, Social and Clinical Considerations
• Prenatal Genetic Testing and Pregnancy Termination: Perceptions of Pastors in the Church of the Nazarene
• Psychiatrists' preparedness, current practices, and attitudes regarding genetic counseling for bipolar disorder
• Parents' Attitudes about Infant Screening for Duchenne Muscular Dystrophy
• An Assessment of Genetic Counselors' Attitudes Towards Disability
• Preimplantation Genetic Diagnosis: A website for Healthcare Professionals
• Survey of Autism Care Providers: Assessing Knowledge of General Genetics, Autism Genetics, and the field of Genetic Counseling
• Genetic Counselors and Autism: Assessment of the Knowledge Base
• Assessing Pediatricians' Attitudes Towards p32 Testing in Children of Li-Fraumeni Syndrome Families

2001 Research Projects

• Development and Evaluation of a Brochure Outlining the Genetic Counseling Profession and the Steps Needed to Take to Become a Genetic Counselor for Undergraduate Professors and Advisors
• The Effects of Disease Gene Patents in Clinical Genetic Counseling Services
• Congential Heart Defects: An On-line Guide for Patients and Their Families
• Issues Surrounding the Newborn Screening Program and Attitudes Towards Genetic Testing for Deafness
• Prenatal Testing and Disability: the Role of Genetic Counselors
• Obstetricians-Gynecologists' Knowledge and Interests in Providing Genetic Counseling for Breast and Ovarian Cancer Susceptibility

2000 Research Projects

• Assessing Genetic Counselors' Knowledge and Position on Professional Licensure
• Genetics in Oncology: Current Practices with Respect to Genetic Testing/Counseling
• The Needs of Individuals with Huntington's Disease, Their Caregivers and Their Families: Assessment of the Members of the Massachusetts Chapter of the Huntington's Disease Society of America
• Cystic Fibrosis Newborn Screening: Will anxiety caused by "False Positive" test results affect testing decision making?
• The Emotions Genetic Counselors Experience in Delivering Bad News
• A qualitative study on the patient's perspective of the impact of pregnancy loss on a woman's decision to attempt another pregnancy
• Hearing Parental Voices: An Opinion Survey on the Use of Plastic Surgery for Children with Down Syndrome
• Suicidal Ideation in Genetic Counseling

1999 Research Projects

• Important Information for Families with lestories of Congenital Adrenal Hyperplasia Before and During a Pregnancy: A Guide for Obstetricians and Genetic Counselors
• Ethical Perspectives of Genetic Counselors: Does Area of Specialty Matter?
• The Misleading Word: The Reporting of Genetic Research on Mental Illness in Print, 1987 through 1994
• Attitudes of Clinical Geneticists and Genetic Counselors Towards Patient Use of the Internet
• The Meaning of a Diagnosis for Parents of Pediatric Genetic Patients
• Development of a Psychological Assessment Questionnaire for Genetic Counseling Patients in Cancer Settings
• Examination of the Genetic and Non-genetic Associations with Double Outlet Right
• The Word 'Race' in Genetics and Medicine: A Survey of Basic Textbooks

1998 Research Projects

• The Relationship Between the Pregnant Genetic Counselor and the Prenatal Patient
• Educating Each Other: Conversation Between Genetic Counselors and Those with a Personal or Professional Interest in Disability Awareness
• The Incidence of Cancer in First Degree Relatives of Women Diagnosed with Endometrial Cancer Under Age 55
• Genetic Testing for Facioscapulohumeral Muscular Dystrophy (FSHD): A. Guide for Families
• Jewish Genetic Diseases: A Comprehensive Information and Counseling Guide for Rabbis
• Genetic Counseling and Assisted Reproductive Technologies: Marketing Our Services
• Disability Awareness Training in the Graduate Genetic Counseling Training Programs: A Survey of Recent Graduates and Program Directors

1997 Research Projects

• Comparison of Mothers' and Fathers' Perceptions of Parental Stress and Useful Support Services: Parents of Children with Down Syndrome
• The Reproductive Effects of Cancer Treatment
• The Impact of Tay Sachs and the Allied Diseases on Siblings
• Guidelines for Counseling Couples Who Continue Pregnancy Following Prenatal Diagnosis of Trisomy 13, 18, or a Related Condition: The Result of Surveying SOFT Members
• Knowledge of Genetics Principles and Recent Advances in Genetics - A Tale of Two Cities Current Practices of Genetic Counselors in Assessing Alcohol Use During Pregnancy
• A Survey of the Attitudes of Individuals at Risk for von Hippel-Lindau Disease Towards Genetic Testing
• Rabbinical Counseling Practices Pertaining to Health and Genetic Issues

1996 Research Projects

• An Analysis of the Cystic Fibrosis Carrier Screening Practices of Members of the National Society of Genetic Counselors
• Genetic Counseling and Down Syndrome
• Providing a Resource in Genetics for Early Intervention Programs
• A Survey of the Understanding of Recent Advances in Genetics and Knowledge of Genetic Principles Among the University Community
• Maternal Serum Screening: The Physician's Experience
• The Assessment of Services Provided to Couples Who Terminate Following Abnormal Prenatal Diagnosis in Region I
• A Two-Part Study of Canavan Disease: Survey of Genetic Counselors and Interviews of Parents

1995 Research Projects

• Genetic Counseling Practices in Germany
• Providing Genetic Services: The Role of the Nurse Midwife
• Consumer Involvement in Medical Policy Making and the Status of Consumer Rights: An Analysis of the Newborn Screening Programs in the US
• Planting the Seed of Adoption: Endorsing a Parenting Option
• The Experience of Direct Presymptomatic Testing for Huntington Disease: A Retrospective Study
• A Study of Late-Onset Tay-Sachs Disease
• Counseling About Cancer: Strategies for Genetic Counselors

1994 Research Projects

• Cystic Fibrosis Testing for Echogenic Fetal Bowel Syndrome
• Noonan Syndrome
• The Impact of Residency on Adults with Down Syndrome: A Review of the Literature and Pilot Study
• A Tay-Sachs Disease Education & Carrier Screening Program for Brandeis University
• Smith-Lemli-Oplitz Syndrome - Clinical Research and Genetic Counseling Issues Related to the Recently Described Biochemical Defect that Causes SLO
• Human Genetics: Principles, Issues and Applications
• Genetic Counselors' Attitudes Toward Their Own Pregnancy and Prenatal Care

Applying to the Program, Admission & Financial Aid
Brandeis Community
Contact Information
Coursework and Curriculum
Current Employers of GC Graduates
FAQ's
Faculty
Fieldwork and Clinical Training
Genetic Counseling as a Profession
Introduction
Objectives
In Their Own Words -- Reflections on the Brandeis Genetic Counseling Program
Program of Study
Research Projects
The University & Boston Area
Welcome from the Director & Co-Director

Additional Websites: Life Sciences, Brandeis University

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